Tuesday, August 2, 2011

Scarlett still recovering, waiting for ultrasound, likely has a blood clot.

The doctors are now saying that due to the cath, they can't feel a good pulse in Scarlett's right leg.  So they are ordering an ultrasound to check it out (which is taking painfully long to get).  They said they aren't worried about leg circulation, but this adds a significant wrinkle because she'll now need lovenox injections for the next 3 months or so (on top of the already-planned aspirin).  On the up side, Scarlett woke up and ate nearly twice what she normally does.  We're all so exhausted we can't even see straight.

Scarlett's Cath is done, she's recovering now, which could take 6 hours.

Hey Scarlett!  That note was from Daddy.  We love you sweetheart!  ...The cardiologist in charge of Scarlett's heart catheterization told us that everything was right on!  Shunt is open, pressures look great all the way down her aorta, and so forth.  The final hurdle is Scarlett proving to the attending Dr. that she can get the caloric intake she needs daily.  Then we are gone like a freight train [from this hospital]!!!  Come on baby girl, time to eat eat eat eat eat eat!  Love, your parents.

Scarlett is in the cath lab. FINALLY.

Those 4 hours this morning with a screaming, hungry baby and a crying mama who couldn't feed her child were NOT fun.  The cath lab team has finally taken Scarlett back, and we won't get our first update until about one hour from now.  All the stress of today combined with knowing we don't get to go home soon has proven to be a lot, but we're trying to hang in.  Pray for us........

Well, doesn't look like we get to go home soon after all.

Scarlett still has to get her heart cath today, and the nurse practitioner just stopped by to burst our bubble.  The nurse yesterday led us to believe we could go home by Wed., but now the nurse prac. says we'll be lucky if we get Monday of next week.  Apparently Scarlett's feeding isn't good enough, she isn't getting enough calories, and may need formula supplements.  This is pretty much upsetting to us because up until the little meeting we just had, they had also not mentioned any issues with her feeding at all....

Monday, August 1, 2011

Scarlett's all settled in the CCU

     Like Aaron said Scarlett is all settled into the CCU as of today.  We got to be a lot more hands on with her doing all of her feedings and most of her diaper changes!  It was a very busy day for our little girl!  She got an echo and I also gave her her first bath.  She did not like it! She had several doctors in and out throughout the day telling us about her upcoming procedure.  Tomorrow Scarlett will undergo a Heart Catheterization.  This is a test where they will put a catheter in her groin and be able to get a good look at what her heart is doing.  They like to do this before they send the baby home.  If everything goes well then we may be out of the hospital VERY soon!!!  
     On another note, I have to brag on my man a little bit!  Aaron has been such a GREAT support during this time!  And a WONDERFUL daddy (he even changed his first diaper today, and it was a stinky one!!!)!  I could not be more proud of my Hubby!  I Love you Aaron Daniel!!!! 

Scarlett is in the CCU.

The Cardiac Care Unit (CCU) Nurse mentioned the words "discharge plan" today.  Boy was that nice to hear.  We may have a "plan" by the end of the day.  Everyone is still exhausted, but doing well.  Scarlett looks great and her O2 stats are very solid at around 87.  Right now the plan is to make sure Scarlett is ready for life outside the hospital which means breastfeeding from Mama!  Mama and Scarlett are presently both napping in Scarlett's new room.  She has one roommate, Zoey.  It's a bit of an odd setup, but the room Scarlett is in now holds two baby "cribs", and two small areas for families to sit around their child.  Our roommate's family has little kids, which always adds to the fun.  We aren't bothered though.  We understand what an amazing blessing little kids are.

Scarlett's moving to the CCU

     I just spoke with Scarlett's nurse to get an update on her night last night.  She did very well through the night.  Her O2 stats were in the mid to high 80's all night and she ate really well (70ml of milk for one feeding!).  The nurse said that by this afternoon our little girl should be in the CCU.  Today Aaron and I will take some classes so that we can take good care of our little Scarlett once she is discharged and we should also be able to give Scarlett her first bath and get her dressed for the first time!  We are so blessed and thankful for our little girl's quick recovery time!  Thanks again to everyone who has been praying and thinking of Scarlett, we know that it has helped immensely!!!  Praise God for our healthy girl!!!