Monday, August 19, 2013

Scarlett is still doing wonderfully!  We are almost at six weeks post-op which is great, because that means her breastbone will be healed fully soon!  This is so great because she is not supposed to do certain things that are impossible to keep a toddler from doing, such as raising her arms, climbing, and bending at the waist!  It will be so nice not having to limit her anymore!  I'm sure she will be very happy too!  Otherwise there is no new news!  Thank you God for your amazing grace and our beautiful daughter!!!

Mommy and Daddy Love you Scarlett Rose!!!!!

Thursday, August 8, 2013

23 days left for fundraiser...

Friends, family:  thanks again so much for the support, dedication to us, and outpouring of love during this time.  Words can't express how thankful to God we are that our daughter is thriving!  She should not have to go back to CHOP for an entire year :).

At the end of the fundraiser in 23 days we will make the donation to the Children's Heart Foundation and then start preparing to pay medical bills!  If you planned any local fundraisers, plan to donate, or anything of that nature, this is just a reminder that we will close the fundraiser at the end of August.

Please contact us with any questions.

Getting back into the swing of things!

  Well, we have been home for a couple weeks now and Scarlett is doing wonderfully!  She has had follow up appointments with her local cardiologist and her pediatrician.  During the cardiology appointment Scarlett had to get yet another chest x-ray to see if there was still fluid in/ around her lungs.  The x-ray came back clean with NO FLUID!!!  This is great news and means that we can start to wean her off of her diuretics that she currently has to take.  When she left the hospital she was on three diuretics that she had to take twice a day, she is down to two and one of them she only has to take once a day.  It will be so nice when she doesn't have to take them anymore as she has decided that taking medicine is not fun!  She also seems to notice if I put it in ANY food and will not even try a bite if she senses the meds are in there!

On another note she has been doing really well verbally!  Scarlett has started to whip out two word phrases and even a couple, three to four word sentences!  This thrills Mommy and Daddy!  She will gladly say "Hi Dada/Mom" upon arrival!  It is so sweet to get a welcoming like that!  She also likes to play ball with our dog Boo.  She will throw the ball and say "Get ball Boo!".  Every now and then she even throws in, the, to make it "Get the ball Boo!".   We have also started to try potty training.  Before Scarlett's surgery she was showing signs that she was ready, but I wanted to wait until after surgery so she would not become frustrated while in the hospital.  She has gone potty a couple times, but doesn't seem too interested in it so far.  Today I got some M&M's for a potty reward to peak her interest a little bit!  She LOVES M&M's, I guess we'll see just how much!

Otherwise here are some pictures of our beautiful little girl.

Scarlett and her Birthday Cake!

Just kickin' back drinkin a baba with Daddy!


What a cutie!

Always take time to stop and smell the flowers...

and then lounge in the grass!