This family! !!!!!!!
Thursday, July 25, 2013
Wednesday, July 24, 2013
Monday, July 22, 2013
The current plan: Travel back up to Philly on Wednesday for Scarlett to receive a check-up, x-ray, and echo[cardiogram] along with one [hopefully] final Dr. visit. The Dr. will then clear Scarlett to leave the east coast for a good long while if all looks good (please pray about this)!! Then we should be on our way home Wednesday/Thursday if all goes as planned.
Again, words can't express how precious, blessed, and amazing our daughter is to us, but I will post some pictures when I can!
Blessings to you and yours,
Remember if you want to contact us, you may use this email address.
Saturday, July 20, 2013
Friday, July 19, 2013
Thursday, July 18, 2013
Lovie walking on the CHOP Cardiac Floor
Wednesday, July 17, 2013
I will try to upload a picture or two later this afternoon.
Tuesday, July 16, 2013
One minor setback was that Scarlett's chest tube is not coming out today, so it's possible that we may not leave the hospital this week. We aren't sure yet, though, and judging by how well she is doing overall it's probably still possible. We are taking it one day at a time and praising the Lord for our precious girl...she'll be 2 years old in 11 days.
Monday, July 15, 2013
Sunday, July 14, 2013
Saturday, July 13, 2013
There is a lot going on it's getting more difficult to keep up with the blog but scarletts fever has persisted they're taking cultures and they are now forcing nurses to wear mask around her and we are booted from the floor kitchen to avoid spreading of germs so...its a little tough right now please pray for her and strength for mom and dad
Between a fever, constipation, and exhaustion, Scarlett had a very rough night.. she slept some, but she is even starting to act a little sad and doesn't wanna get outta bed and be held by mommy so please keep us in your prayers! mommy and daddy are getting very very tired and we're at the point where we just need prayers and support!
Friday, July 12, 2013
Thursday, July 11, 2013
Words can't express how ecstatic we are about how great she is doing, how thankful to the Lord we are, and how much we love our daughter. Thanks again for all the prayer and love!
Hospital staff are very pleased with her progress.
More details later tonight we hope.
Not much more to say, praise the Lord for His grace...Dr. said she can even have a bottle later! We are overjoyed. No complications!
Nurse said lovie is being closed up and we should be seeing her soon after we talk to her surgeon.. Everything gone well so far. We are so humbled, blessed, and uplifted today. God has truly granted us a peace that can only come from Him. Praise Him! Will post more as we can.
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Wednesday, July 10, 2013
Today we got some GREAT news!!! We had gone to the hospital this morning prepared for a heart MRI and Cath. When we got there they prepped Scarlett and took her back for the MRI. During the MRI we talked to the Cardiologist that would be doing her cath and he informed us that depending on the pictures they got during the MRI she may not need the cath. We didn't really see that as a possibility and just prepared ourselves for the cath. About an hour and a half after they took Scarlett back our nurse came to inform us that the MRI was done and the doctors didn't see any reason to do the cath! They had gotten all of the images necessary with the MRI and the echo that was done yesterday! We are THRILLED!!! This also means that since she didn't need the cath she gets to come home for the night, instead of staying in the hospital for the night! With all of that good news today was the hardest by far for me (Mommy) watching my little girl go under anesthesia was EXTREMELY hard! What an amazingly strong little girl we have!
We would like to thank EVERYONE that is praying for us, your prayers are obviously being heard!
Here is a picture of Scarlett Pre MRI!
Tuesday, July 9, 2013
Our road trip to Philly begins! The weather was gloomy and there was a long road ahead of us, very much like our emotional state at the time! We had decided to stay at a hotel about 75% of the way to rest for the night. Scarlett LOVED the hotel! We had some pizza and went to bed. The sleep didn't last long, Scarlett woke up about 1:00 AM and was wide awake!
After four hours of laying around we decided to hop in the car and head to CHOP. We arrived at CHOP about an hour and a half early and checked in. We saw all the doctors and were released for the day. This visit was just a regular visit for them to check her development. When we stepped out of the Cardiac Center into the lobby Grammy and Grampi were there to greet us. We then went to unpack some of our things at the apartment where Daddy, Grammy and Grampi will stay, and went to get some dinner. After dinner we parted ways with Grammi and Grampi and went to stay with Mrs. Cindy for the night. THANK YOU CINDY!!!!! We pretty much went to sleep right away, we were all exhausted from our LONG day!
After a restful night of sleep we woke up to get ready to head back to CHOP. We were scheduled for Scarlett's pre-surgery visit. During this visit we saw a nurse practitioner that explained the MRI and Catheterization that is scheduled for Wednesday, had and EKG, Echo, Chest X-ray, and had to get some blood drawn. Scarlett did very well during her visit! It is amazing to me how much one little girl can take! She is one tough cookie!
Now we are resting and gearing up for another long day at the hospital tomorrow. Tomorrow we will get to the hospital nice and early to prep for her heart MRI and Cath. Once she is done with the Cath. she will remain in the hospital until they discharge her after surgery. Here are some pics of our sweet little "Lovie"!
|Scarlett in the recycle bin at the apartment!|
|Scarlett and her Ice Cream face at the hospital today!|