Monday, June 25, 2012

CHOP Center for Fetal Diagnosis and Treatment Family Reunion

   So this past weekend (June 24th, 2011) was CHOP's Center for Fetal Diagnosis and Treatment Center's family reunion.  Aaron, Scarlett, and I made the two hour trip to Philly to join in the festivities.  It was a great day of seeing other families who have been blessed by having CHOP in their lives!  It was also great to see some of the Dr.'s that worked with us.  We got to see the echocardiographer that took sooooo many pictures of Scarlett pre-birth and the Dr. that delivered Scarlett!  There were also nurses from the SDU, which was where Scarlett was delivered, but I did not see any of the nurses that cared for us specifically.  Here are some pictures of our day! 

This is right when we arrived

Here is Scarlett wearing the shirt they gave her!

The back of the shirt!

Scarlett and Mommy waiting to ride the carousel

Scarlett's first carousel ride!

She loved it!

What a great day!!!

More big smiles, if you look closely you can see all four top teeth!

Family photo from the reunion!

Wednesday, June 20, 2012

Went to visit CHOP Monday June 18, 2012 and other updates

     This past Monday we made a trip up to CHOP.  We had an appointment to be seen by the NeuroCardiac Care Program (NCCP).  This program is one that tracks Scarlett's development.  When we go for a NCCP visit we see her Cardiologist, a Neurologist, Speech Therapist, Occupational Therapist and a Physical Therapist.  Everyone had great things to say about Scarlett!  She is on or above schedule for everything except speech.  We were concerned about her speech going in, but the Neurologist said it is not a big deal at this time.  It seems that Scarlett has been more concerned with trying to get around and less concerned about her verbal skills.  Still Aaron and I are holding our breath waiting for that little mouth to say the sweetest things possible!  (Dada and Mama!!!)  Otherwise Scarlett is doing wonderfully!  She is such a sweet little girl!  She frequently gives kisses randomly throughout the day.  It melts my heart when she grabs my face so she can plant one on me!  Oh how we LOVE that little girl! 

     This coming weekend (June 24th) we will be heading back to CHOP.  This time it will be an only fun outing- NO Dr. VISITS!  This weekend is CHOP's annual Fetal Diagnosis get together.  It is a time for all the families that had been followed by CHOP since before the delivery of their children.  I am so looking forward to this!  It will be great to see the families that share a love for CHOP and hear all of the amazing stories that started under the same roof!  It will also be great for Scarlett to visit the hospital for something fun!  Although I know she is really too young (but won't be for too much longer) to correlate the hospital as a scary/ uncomfortable place, functions like this will allow her to see the full spectrum of what they do, why she goes there, and have a little fun while she is there! 

     As far as everything else is concerned, we have found a place of residency and are adjusting nicely.  We still hope we are not here for too long and that we will soon be able to relocate to Indiana!  Until then though, we at least have a clean, comfy place to stay!  We will keep you updated and as always I will try to write a little more frequently!

Here are some recent pictures for your enjoyment!!!

Scarlett in her cute bow Aunt Donna made for her!

Scarlett and Mommy!

Another cute bow courtesy of Aunt Donna!

Daddy lovin' on a little girl

Getting ready to get in her pool that Grammy got her

This pool is AWESOME!!!!!!!

Sitting in the rocking chair at Grandma's

Bath time!  I just LOVE the water!!!!!!

Sunday, June 3, 2012

Scarlett looking good, home from Hopkins.

Precious Scarlett is feeling better, and she is out of the hospital; for now, we are staying with dear friends who have graciously welcomed us into their home.  We are still searching for the next step since the originally planned rental space did not work out as planned...More to come..

10 mo, 1 week..another hospital visit on 2 Jun 12...

I don't have any pictures to post at this time.  We just got back from Indiana on a 2-day driving trip last night, and Scarlett was running a fever, so bad that we took her to Howard County General in MD.  She was immediately transferred to Hopkins because they don't have the necessary specialists at Howard County Gen.  The doctors determined that she has strep throat, and are holding her still because she may also have some type of bacterial infection which could pose more of an "issue."  To top that off, Daddy was a smidge mistaken about the new living space we planned to move into.  It turns out that it will be unsuitable for Scarlett, so some other plan will have to be put into motion.  Readers, please pray for us as we go through this next stage in our lives.. our house has been sold and our ultimate goal is to find permanency in Indiana, we just aren't quite there yet.  Mommy and Daddy are so in love you with Scarlett!  Get well fast!!