Lovie in surgery

She's asleep for the procedure and in His hands..next update around 1030.

July 10, 2013, MRI/ Cath Day...

Today we got some GREAT news!!!  We had gone to the hospital this morning prepared for a heart MRI and Cath.  When we got there they prepped Scarlett and took her back for the MRI.  During the MRI we talked to the Cardiologist that would be doing her cath and he informed us that depending on the pictures they got during the MRI she may not need the cath.  We didn't really see that as a possibility and just prepared ourselves for the cath.  About an hour and a half after they took Scarlett back our nurse came to inform us that the MRI was done and the doctors didn't see any reason to do the cath!  They had gotten all of the images necessary with the MRI and the echo that was done yesterday!  We are THRILLED!!!  This also means that since she didn't need the cath she gets to come home for the night, instead of staying in the hospital for the night!  With all of that good news today was the hardest by far for me (Mommy) watching my little girl go under anesthesia was EXTREMELY hard!  What an amazingly strong little girl we have!

We would like to thank EVERYONE that is praying for us, your prayers are obviously being heard!      

Here is a picture of Scarlett Pre MRI!

Our trip to Philly

Sunday:

Our road trip to Philly begins!  The weather was gloomy and there was a long road ahead of us, very much like our emotional state at the time!  We had decided to stay at a hotel about 75% of the way to rest for the night.  Scarlett LOVED the hotel!  We had some pizza and went to bed.  The sleep didn't last long, Scarlett woke up about 1:00 AM and was wide awake! 

Monday:

After four hours of laying around we decided to hop in the car and head to CHOP.  We arrived at CHOP about an hour and a half early and checked in.  We saw all the doctors and were released for the day. This visit was just a regular visit for them to check her development.  When we stepped out of the Cardiac Center into the lobby Grammy and Grampi were there to greet us.  We then went to unpack some of our things at the apartment where Daddy, Grammy and Grampi will stay, and went to get some dinner.  After dinner we parted ways with Grammi and Grampi and went to stay with Mrs. Cindy for the night.  THANK YOU CINDY!!!!!  We pretty much went to sleep right away, we were all exhausted from our LONG day!

Tuesday:

After a restful night of sleep we woke up to get ready to head back to CHOP.  We were scheduled for Scarlett's pre-surgery visit.  During this visit we saw a nurse practitioner that explained the MRI and Catheterization that is scheduled for Wednesday, had and EKG, Echo, Chest X-ray, and had to get some blood drawn.  Scarlett did very well during her visit!  It is amazing to me how much one little girl can take!  She is one tough cookie! 
Now we are resting and gearing up for another long day at the hospital tomorrow.  Tomorrow we will get to the hospital nice and early to prep for her heart MRI and Cath.  Once she is done with the Cath. she will remain in the hospital until they discharge her after surgery.  Here are some pics of our sweet little "Lovie"!   

Scarlett in the recycle bin at the apartment!

Scarlett and her Ice Cream face at the hospital today!

We are there

Second round of appointments today. ..whew!

TRIP BEGINS TOMORROW

Well, we are exhausted, but that's not stopping us from packing for the drive tomorrow!  We hope to get to bed early, rise early, and roll most of the way to Philly tomorrow.  Then on Monday Scarlett's appointments begin.  I'll try to provide more details ASAP.  For now, please continue to keep us in your prayers (we have been feeling blessed, uplifted, and supported!!!), and email us

if you'd like!  Here are a couple photos from this week's shoot.  We love you Scarlett!  Isaiah 40:31.

Unexpected Blessing today!

With Scarlett, every day is full of unexpected blessings, she is our little girl.  However, this evening we were fortunate enough to meet the founders of Gift of Hope, Rich & Maggie.  Gift of Hope is a charity that benefits families with sick children.  Immediately upon their arrival, we felt very comfortable with them.  We were overjoyed and uplifted by the amount of God's love and grace we felt flowing through them, and spent a little time in fellowship. We are so grateful to God for all the blessings, encouragement, and support.  We are especially thankful for the commitment they Rich & Maggie made to pray for our trip, the surgery, and hospital stay.  They let us know that they have a strong prayer chain.

Let me take a minute to also say thanks to friends, family, donors, supporters, those who are praying, caring about us, helping out in any way great or small...we are so grateful for our support network, and for the Lord -Praise Him!  And keep the prayers coming!



  -Daddy

Pre-Philly Trip is underway!

Yesterday our church sent us off right with a wonderful prayer for Scarlett, our trip to Philly, and the days to come involving it all.  They put hands on us and we really felt the power of God's promise "when two or more are gathered..."; it was good.  We also received encouragement and even some support for Scarlett's fund after the service!!  We are so thankful for the people there who care about us, especially considering that we have only been to church there a few times; we are SO grateful.  The car ride to Grammi & Grampi's went smoothly and we topped off a huge Sunday with a few hours at Grandma and Grandpa's.  Now on Tuesday a local photographer has offered to give us family pictures before the Philly trip.  Praise God for that too!  Please continue to pray for us as we prepare for the trip to Philly on Sunday.